diana allen
Location:
England
—
Main Language:
en
Im Diana Allen and i have a son with Ehlers-Danlos IV with Marfanoid feature's but he has other unexplained symptoms that overlap Loeys-Dietz syndrome but Dr Loeys told me Alex did not have LDS as his cleft lip is not part of LDS and his vascular system is fine.The Dr's don not know the full extent of Alex's condition and are not interested either. It is me that searched the internet for years that found these syndromes until one Dr finally listened.
Author's home page in this site…
Latest content created by this user
| Page | |
|---|---|
| My son Alex | Aug 26, 2008 |
| Folder | |
| diana allen | Aug 26, 2008 |
| News Item | |
| My son Alex's teeth | Sep 05, 2008 |
| I am Diana, Alex's mother | Aug 30, 2008 |
| My son Alex | Aug 30, 2008 |
| My son Alex's teeth | Aug 30, 2008 |
| My son Alex's face | Aug 30, 2008 |
